The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Population

ALS cases in the United States

Brief Title

The National Amyotrophic Lateral Sclerosis Registry

Official Title

The National Amyotrophic Lateral Sclerosis Registry

Brief Summary

The purpose of this registry is to (A) better describe the incidence and prevalence of <br /> Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, <br /> such as environmental and occupational, that may be associated with the disease; (C) better <br /> outline key demographic factors (such as age, race or ethnicity, gender, and family history <br /> of individuals who are diagnosed with the disease) associated with the disease; and (D) <br /> better examine the connection between ALS and other motor neuron disorders that can be <br /> confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Detailed Description

The National ALS Registry's Research Notification System allows person with ALS to
participate in clinical trials.

Outcome Measures

Outcome measures are the tests that investigators perform to prove whether or not a treatment being tested in a clinical trial is having any effect.