Find an online community of fellow SBS-IF patients, caregivers, and advocates below as well as some other general resources!
Check out this website for more information on disability resources for individuals with short bowel syndrome.
Learn more about continuing education, tools, and resources available for physicians, psychologists, social workers, and other mental health care professionals who support patients with short bowel syndrome.
Exploring the Impact of Pediatric Short Bowel Syndrome on Parent Well-Being Using a Disease-Specific Pilot Survey
Visit this article to learn more about research on the well-being of family caregivers of children with short bowel syndrome.
Studies Pinpoint Risk Factors for Complications of Pediatric Intestinal Failure
Read this article to learn more about studies evaluating factors that affect the quality of life in patients with short bowel syndrome and other forms of intestinal failure.
A Beautiful Struggle: Parent-Perceived Impact of Short Bowel Syndrome on Child and Family Wellbeing
Check out this research article to learn more about a study that analyzes how parents are impacted by their child's SBS.
PatientWing gratefully acknowledges Dr. Raymond Phillips for assistance in the review of this condition information. Updated July 2023.