Find an online community of fellow PSC patients, caregivers, and advocates below as well as some other general resources!
Living with Primary Sclerosing Cholangitis (PSC)
Visit this website created by Ben's Friends to learn more about the additional support available for PSC patients and caregivers. Ben’s Friends helps patients, caregivers, friends, and families affected by rare diseases or chronic illnesses, find a supportive place to connect with others. This website has forum discussions for various topics where people affected by PSC can find more support, as well has a crisis help line for those who are struggling.
Primary Sclerosing Cholangitis and Social Security Disability
Read about how people living with PSC can file for social security disability.
New Study Explores Unique Approach to Treat a Rare Liver Disease
Read this article about a new study that explores a different approach to treating primary sclerosing cholangitis.
Primary Sclerosing Cholangitis: Therapy with Synthetic Bile Acid Acts Directly on the Immune System
Visit this article to learn more about studies that demonstrated positive effects from administering synthetically produced bile acids and bile acid receptor agonists.