Have you or your loved ones been diagnosed with primary ciliary dyskinesia?

You may be eligible to participate in a primary ciliary dyskinesia clinical trial.

Have you or your loved ones been diagnosed with primary ciliary dyskinesia? You may be eligible to participate in a primary ciliary dyskinesia clinical trial.

What is a clinical trial? Is participating in a clinical trial right for you? Learn more

Recruiting for this study? Get access to patient recruitment tools.
Primary Ciliary Dyskinesia Clinical Trial in Edmonton Alberta
NCT03271840 | Observational patient registry

Have you or your loved ones been diagnosed with primary ciliary dyskinesia?

You may be eligible to participate in a primary ciliary dyskinesia clinical trial.

Have you or your loved ones been diagnosed with primary ciliary dyskinesia? You may be eligible to participate in a primary ciliary dyskinesia clinical trial.

Recruiting

Male & Female

All ages

This study is looking to recruit 30 Participants

Primary Ciliary Dyskinesia (PCD) is a rare disease, which means that any single PCD center has experience with a limited number of patients. PCD Registry is the collection of data about PCD from many centers and countries who treat children with PCD. Collecting data about PCD increase the knowledge on PCD, better describe the course of the disease, and help to better understand the progression of the disease and be used to develop new treatments. In the PCD registry of Alberta, important information about PCD such as time of diagnosis, symptoms, and tests which led to the diagnosis, state of health at diagnosis, the progression of lung function, the occurrence of severe infections, tests and treatments data will be collected from the patients' medical records.

Where you'll go

Selected location

University of Alberta

University of Alberta Change

Edmonton, Alberta, CAN T6G2C6 Map | Learn more
Interested in learning more?
Selected location

University of Alberta

Edmonton, Alberta, CAN T6G2C6

Israel Amirav 7808840296
amirav@ualberta.ca


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