Have you or your loved ones been diagnosed with primary ciliary dyskinesia (pcd)?

You may be eligible to participate in a primary ciliary dyskinesia (pcd) clinical trial.

Have you or your loved ones been diagnosed with primary ciliary dyskinesia (pcd)? You may be eligible to participate in a primary ciliary dyskinesia (pcd) clinical trial.

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Primary Ciliary Dyskinesia (PCD) Clinical Trial
NCT02419365 | Observational patient registry

Have you or your loved ones been diagnosed with primary ciliary dyskinesia (pcd)?

You may be eligible to participate in a primary ciliary dyskinesia (pcd) clinical trial.

Have you or your loved ones been diagnosed with primary ciliary dyskinesia (pcd)? You may be eligible to participate in a primary ciliary dyskinesia (pcd) clinical trial.

Recruiting

Male & Female

All ages

This study is looking to recruit 2000 Participants

The purpose of the international prospective PCD Patient Registry is to systematically measure, survey and compare different aspects of PCD manifestation, course and treatment, to provide data for epidemiological research and to identify special patient groups suitable for multi-center trials. This International PCD Registry is also part of the European Reference Network ERN-LUNG. We follow the recommendations of the EU Expert Committee on Rare Diseases (EUCERD), which recommend an international interoperability of registries and databases to pool and exchange knowledge and data on rare diseases.

Available locations
University Hospital Münster

University Hospital Münster

Recruiting Münster, NRW, DEU 48149

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