The study will seek to enroll 100 sickle cell or thalassemia patients who are age 12 or older who have access to a smartphone or tablet with Internet access daily. The study will evaluate patient-reported comfort level with using a mobile device to record their pain levels, as well as adherence to recording these levels daily. The study will track patients' assessment of their pain, actions taken, and outcomes related to pain management and provider involvement. This study will attempt to collect information about differences in the use of two traditional pain assessment modes (verbal scale and paper) versus the use of a pain assessment tool on a mobile device in the form of a smartphone, tablet, or iPad with an Android or iOS operating system.

Population

Patients experiencing pain or patients with sickle cell disease

Brief Title

Use of a Mobile-based App for SCD Patients

Official Title

Use of a Mobile-based Pain Assessment Application for SCD Patients

Brief Summary

The study will seek to enroll 100 sickle cell or thalassemia patients who are age 12 or older<br /> who have access to a smartphone or tablet with Internet access daily.<br /><br /> The study will evaluate patient-reported comfort level with using a mobile device to record<br /> their pain levels, as well as adherence to recording these levels daily.<br /><br /> The study will track patients' assessment of their pain, actions taken, and outcomes related<br /> to pain management and provider involvement.<br /><br /> This study will attempt to collect information about differences in the use of two<br /> traditional pain assessment modes (verbal scale and paper) versus the use of a pain<br /> assessment tool on a mobile device in the form of a smartphone, tablet, or iPad with an<br /> Android or iOS operating system.

Detailed Description

The study will evaluate patient-reported comfort level with using a mobile device to record
their pain levels, as well as adherence to recording these levels daily. The study will track
patients' assessment of their pain, actions taken, and outcomes related to pain management
and provider involvement. This study will attempt to collect information about differences in
the use of two traditional pain assessment modes (verbal scale and paper) versus the use of a
pain assessment tool on a mobile device in the form of a smartphone, tablet, or iPad with an
Android or iOS operating system. The study will seek to enroll 100 sickle cell or thalassemia
patients who are age 12 or older who have access to a smartphone or tablet with Internet
access daily. Patients enrolled in this study will be ask to use a mobile device such as a
smartphone or a tablet with Android or iOS operating system to record daily pain level and
related information once daily or more frequently for a period of forty-two days. A 1:1
randomization assignment will be made to have patients receive automated "canned" provider
feedback or not.

Outcome Measures

Outcome measures are the tests that investigators perform to prove whether or not a treatment being tested in a clinical trial is having any effect.